Hacking Peer Reviewed Medicine #JACRHack

No 27 Fucking Peer Reviewed

Today I am at the inaugural hack-a-thon in Washington, DC for the Journal of American College of Radiology. I would encourage all of you to follow along the days events on twitter via #JACRHack

The challenge for the event is to redesign access to peer reviewed medical journals for people (as #patients).

I have to commend Dr. Ruth Carlos (@ruthcarlosmd) for her commitment to pushing the boundaries of medicine and collaboration. She has done a tremendous job (as well as the entire team including Dr. Matt Hawkins @MattHawkinsMD et al of the ACR team) in making sure that people (as patients), coders, programmers, advocates, engineers, and physicians are all at the table.

In addition, having the major publisher of peer reviewed literature at the table to help reshape the accessibility issue is a win.

Many times accessing the latest and greatest peer reviewed literature is not possible due to multiple constraints. These constraints can range from financial, to the business models of the publishing world, to mixed access with no explanation to the end user, the patient.

During the brainstorming session there were about 10 ideas pitched. Ideas ranged from an iTunes like business model to the ability to pick the level of literacy you would like for each peer reviewed article.

The teams are busy working today, through the evening, until tomorrow mornings pitch out to the judges.

I am thoroughly excited to be a part of this event.

I am even more excited to listen to the final team pitches tomorrow and see how the teams have taken their ideas and formed them into actions.

Again, I want to applaud the work of Dr. Carlos (and team) in highlighting the importance of allowing the greater masses to have access to peer reviewed literature.

No. 027: Patients need fucking access to peer reviewed literature.

The literature may impact my care, or your care, or the care of one of our loved ones. If it is locked up, it will never have the ability to do what it was intended to do by the creator, the author…..

To impact care at the N of 1.

As always you can feel free to email me at cancergeek@gmail.com or follow me on Twitter @cancergeek

~Cancergeek

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3 responses to “Hacking Peer Reviewed Medicine #JACRHack

  1. LOVE the notion of the varying levels of literacy for patients. And of course, this is not just re the typical understanding of literacy, but more like laying a foundation for the patient on which he can learn more and more about the disease.

    If patients are not given a chance to understand their health issues in a meaningful way that they can explain to spouses, children, neighbors, that patient is really at the mercy of the next charlatan. Example: the supplement company that just offered me the chance for a much-improved everything in my body–requiring only a 3 month supply of their $695 “all-natural produce derived from some scopian venom”…

    Keep up the good work and recognize that good resources for all patients is a valuable tool for our society.

    • NAILED IT => “If patients are not given a chance to understand their health issues in a meaningful way that they can explain to spouses, children, neighbors, that patient is really at the mercy of the next charlatan.”

  2. I think part of the issue here is that academics are rewarded for publishing in high impact journals, which are the ones that are mostly read by other academics. In medicine, open access costs too much for the author (it is usually free in social sciences) … but really, what might make more sense is that academics be rewarded for writing two versions of their findings .. one that is academic centric and one that is more accessible (in both language, but also freely accessible). It is a bit of a tough problem because the academy is design to perpetuate itself, so change comes slowly … There is some movement with the folks at the Mayo Clinic may actually help to lead the way in this by giving academics credit for social media activities … https://socialmedia.mayoclinic.org/discussion/mayo-clinic-includes-social-media-scholarship-activities-in-academic-advancement/

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