A 30-something single mother works multiple jobs to put a roof over her child’s head and food in their stomach. Her child happens to have been born with a chronic condition impacting her child’s ability to breath, participate in normal daily activities, and to grow up as a “normal” kid playing in America.
After numerous physicians, tests, examinations, and yearly surgeries one physician identifies the root cause to all of her child’s issues. There is a fix, but it requires a surgery.
As any good mother, she decides to move forward with the surgery in hopes to bring a new normalcy and way of life to her child. The child’s ability to talk, to breath, to play, to live.
She has a job. She has a car. She has a place to live. She has insurance. She doesn’t ask for any help…she just provides.
She does what is right for her child, her family.
Her child receives the surgery.
Yeah! Crack open the champagne. Hooray. Another win for the healthcare team….
And then the real tragedy occurs.
She needs to stay at home to help her child recover.
She loses her job. She loses her insurance. She loses her car. She loses her place to live.
We designed a system of care that provides a fix, but no support or recovery. No assistance. No marriage between the family, the care team, the community to prevent a tragedy turning into a sin.
A design flaw that negatively turns a happy event into a tragedy.
We need to ask ourselves:
How do we prevent healthcare from designing sins and tragedies?
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