As most of you have seen from my tweets I had the opportunity to attend the Patient Experience Conference hosted by the Beryl Institute in Chicago this week. I have a lot of ideas, opinions, and thoughts post conference, so there may be a few posts forthcoming.
The main theme for the conference is obvious, it is patient experience. During one of the sessions, I was speaking to a gentlemen next to me and he share with me that this was truly an eye opening experience.
My response was that I too thought that the content was very good, but in looking around, I wondered where all the patients were seated?
The gentlemen responded and said that is a good question. He then replied and said, “We are all patients. It is everyone in the room.”
I smiled and responded, “I agree. We are patients. But we are also healthcare workers that live and breathe the language, the dialogue, the hierarchy. We inherently know how to work the matrix. We can make it work for ourselves or a loved when if we need.”
So it made me pause and simply ask myself, are all patients created equal?
I know how to make healthcare work for me. A nurse or another colleague may know how to make it work for them. Yet, is it fair to use our voices to define the changes that need to be made in healthcare? Shouldn’t it be those people and communities that do not work inside of healthcare?
If we truly want to make a change, do we not need to take a true outside-in approach versus looking inside-out?
I prefer to know of the stories, successful and not so successful, of those that are new or frequent healthcare, but do not have an insiders knowledge. Those are the users I want to tap into to make the right changes.
What story do you think needs to help reshape the experience within healthcare?
As always, you can feel free to contact me at: CANCERGEEK@GMAIL.COM or follow me on twitter @cancergeek
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